It's been a hot minute...
November 15, 2020
Somehow, each time I sit down to write an update…my brain
refuses to join me. This morning, sitting in the cool air on the front porch at
One Shot Ranch, maybe I can coax it along.
That seems to have been the theme for the last month or so.
My body is present, but my brain is MIA. I have also never experienced such
fatigue. Goodness, I am not sure I have ever slept as much as I have in the
last month. Maybe when I was an infant…but I can hear my mom laughing
hysterically at that statement. I’ve been told I am lucky to have a younger
brother because I was the worst infant ever!
The last month has also brought on a great deal of introspection.
Between the intimate experience of managing cancer to the intrusiveness of a “unique”
presidential election, I will admit to being slightly overwhelmed emotionally
and physically during the last few weeks. When I say “introspection,” I mean that
every moment, every interaction, every bit of information I allow into my realm
is intensified, made brilliant, and impactful. I’ve had to become somewhat selective
as to what I allow in.
Additionally, my Moorhead Junior High family went all out on “Pink Out!” Teams all over the school came together to support me (and Breast Cancer Awareness Month)! These photos mean more than you can possibly imagine! Lot’s of happy tears came flowing when I saw all of these smiling faces! I miss you all more than you know!
Cancer and chemotherapy have helped me realize what I REALLY
need – emotionally, physically, spiritually, financially – you name it. I am
faced with the question daily – “What exactly do I NEED today?” And if certain
things, ideas, people don’t meet the need, I find myself kindly passing on such
offerings.
During 2020, we have ALL experienced isolation because of
quarantine. During the nationwide quarantine in the spring, however, it almost felt
like a team effort. Somehow it seemed as if we all did this collectively, we
were getting something done that would benefit everyone. This current isolation I am experiencing while
those close to me go to work every day and operate somewhat normally is maddening
and difficult! My doctor told me Tuesday that joining family for the holidays
is not going to be a good idea. However, I am hoping to manage a way through RV
travel and eating outside to get some “distanced” family visits to happen!
The greatest news of the last four weeks is that my tumor
has shrunk by MORE than 50% in reaction to the first four chemo treatments!
That is exactly what the doctor had hoped to see! This Tuesday, I start the
second phase of treatment. Whereas before I was getting a chemo treatment every
two weeks, this regimen requires a chemo treatment weekly for 12 weeks.
Typically, for stage 1 breast cancer, this phase of chemo
consists of a drug call Taxol (this drug stops cancer cells from dividing and
replicating). After reading many medical studies (ones I found as well as ones
provided by my oncologist), we have decided to add another drug, Carboplatin, to
my treatment. Carboplatin is a platinum based drug that wrecks the DNA of the
cancer cells. Studies have shown that when Carboplatin in added to the chemo regimen,
there is a 20% better chance that the cancer cells are 100% dead at the time of
surgery. This is called a “complete pathological response (CPR). When there is
a CPR of the cancer, surgery is less risky because of the lack of any live
cancer cells.
Adding Carboplatin increases the toxicity level of the
treatment. However, I have already been given the MOST toxic chemo drug – Adriamycin
– known as the “Red Devil.” My particular reaction to this drug has been “mild”
(nothing about this is “mild”) as compared to others. The doctor feels that I
can most likely tolerate the addition of Carboplatin and that the gain outweighs
the risk. We can also simply stop/remove the drug at any time I say I’m done.
This round also presents a new schedule. I have been going
to the doctor/clinic once every week. This round requires a visit to the oncology
clinic four times per week. Tuesday is chemo infusion. Wednesday, Thursday and
Friday I have to go back for Xarvio shots and bloodwork. These shots are fast
acting shots that help my body produce white blood cells quickly. Having an
infusion weekly requires a quick recovery and these shots will help.
I am a little nervous about the weekly treatments because
during the first 4 treatments, that second week after the infusion seemed to be
a “good week.” (One where I actually seemed to have a bit more energy and immunity.)
I am not sure how that will correlate during this phase.
Although I miss my work family, my classroom, my students
and the schedule that teaching brings, I am thankful for the time to be able to
spend in Lovelady. The quiet, fresh, beautiful setting with no TV (ok we get two
channels), no traffic and just a sense of peace is therapeutic. I seem to get
somewhat revitalized here.
I am almost halfway through my chemotherapy! With Thanksgiving
and Christmas on the horizon, I feel like the next several weeks will go by
quickly. I am thankful for that. I am also deeply grateful to everyone who
reads this, prays for me, kindly helps out in important ways, or just simply
impacts me in a special way. There are so many of you and you know exactly who
you are! I love you and am truly more thankful that you know.
Although I said I didn’t think I was the “wig type,” I did
it! My oncology nurse mentioned a program to me that I think is amazing. “THair
for You” is a program through Visible changes. They give FREE wigs to women
going through chemotherapy. The owner and CEO of Visible Changes is a cancer
survivor. After she went through her treatment, she decided to implement this
program to help other women. I registered, picked a wig from their gallery and
went into VC at the Woodlands Mall to have it fitted. The sweet woman who
helped my is also a breast cancer survivor and was excited to help. I won’t wear
the wig every day, however, it is lovely to have for special occasions!
Life on the ranch…
I had a wonderful first weekend of November with ALL of my
kids! If you have more than one child, you KNOW how hard it is to get them all
in one spot for more than a hot minute! I kept apologizing to them that I
gathered them to sit around and look at me, but my energy level is so low all
the time. I think secretly, they were all glad for the down time with mom, too!
I am thankful that my mom and Rick are back in Texas close to me. I have enjoyed spending time with her and that’s just going to get better with my new schedule…she’s on for Wednesdays! Yay!
And then there’s this one…words cannot express the positive
energy this man brings me every day. He has put so much on the backburner to be
here for me. My knight in shining armor!
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